Data for Decisions and the Patron program of research
Creating knowledge from primary care data through research
Explore the 'Communities & Data Use' tab for more information for GPs and Practice Managers, Consumers and Researchers (including submission deadlines for Data Access Applications).
About Data for Decisions
The ‘secondary’ use of de-identified medical records is widely recognised to have the potential to improve public health. Individual patient records are important to doctors and individuals, but when de-identified (to maintain anonymity and patient privacy) and combined with many thousands of other records, a powerful research tool is created with the potential to generate new knowledge to improve health care.
Data for Decisions, incorporating the Patron program of research, is a University of Melbourne research initiative undertaken through the University’s Department of General Practice and Primary Care. With the permission of general practices or other primary care providers, we collate data from de-identified medical records and use the information for research to increase knowledge, quality improvement and improve healthcare practices. The data is stored in a University of Melbourne managed primary-care data repository called Patron. An independent Data Governance Committee made up of members of the public, GPs, practice managers, researchers and a lawyer, makes a determination on behalf of the data providers on which researchers / which research projects can access the data.
In some instances, the primary care providers agree to provide their de-identified data to be used only for a specific research project instead of being made available to a range of projects.
The first practices consented to contribute to Data for Decisions in late 2017, but the program had been under development since 2016, building on strong foundations of international good practice in data governance and management.
Data for Decisions research initiative
1 minute video
See our open access article - Gathering Data for Decisions - in the Medical Journal of Australia.
Rachel Canaway, Douglas IR Boyle, Jo‐Anne E Manski‐Nankervis, Jessica Bell, Jane S Hocking, Ken Clarke, Malcolm Clark, Jane M Gunn and Jon D EmeryMed J Aust 2019; 210 (6): S12-S16. || doi: 10.5694/mja2.50026
Data for Decisions promotional video
3 minute video
To be fully informed, listen to the full discussion about Data for Decisions (filmed April 2018):
Data for Decisions research initiative (extended version)
15 minute video
The Data for Decisions program collects and uses de-identified patient information for research in an ethical and secure way. The information is stored in a database managed by the University of Melbourne. Data contributed by general practices will help to improve the way medical care is delivered and inform the education of future health professionals.
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GPs and Practice Managers
Information for GPs and Practice Managers thinking about contributing to Data for Decisions.
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Consumers
Information for healthcare consumers about the Data for Decisions research initiative.
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Researchers
Information for researchers wishing to access data in the Patron primary care data repository.
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Using data to expand knowledge
Data for Decisions focuses on the use of de-identified data from general practice medical records to expand knowledge and ultimately promote service and population health improvements. Every research project that accesses the data stored in the Patron primary care data repository does so only after meeting rigorous data governance and ethics requirements. Each project using Patron data is described below, and each research group will provide a reader-friendly summary of their findings, and list of resulting publications, when available.

Projects Approved To Use Patron Data
- PAT001 - Defining the burden of antimicrobial prescribing in primary care attributable to sore throat
- PAT004 - Trialing the implementation of a quality assurance framework in the Patron program
- PAT005 - GP-NAPS: The feasibility of passive audit of antibiotic prescribing in general practice
- PAT009,010 - Future Health Today: Detecting people at risk of chronic kidney disease
- PAT011 - Understanding and exploring adolescent health presentations in the Victorian primary care setting
- PAT012 - Studying the Continuum of Cancer Care through Linking Primary Data
- PAT014 - Shared decision support for patients: An antimicrobial stewardship strategy to promote appropriate antibiotics use in primary care, pilot phase
- PAT015 - Quality indicators for the detection and management of chronic kidney disease (CKD) in primary care: An exploratory study using electronic medical record (EMR) data in Australia, Singapore, Canada and Sweden
- PAT016 - Markers in Neuropsychiatric Disorders – utility of neurofilament light chain as a screening test in general practice
- PAT017 - Spatial convergence of dementia and cardiovascular disease risk: evidence to inform policy and practice
- PAT019 - Access to Patron data to enable multiple research projects associated with the VCCC Data-Driven Research Program
- PAT020 - Evaluating a safety and efficacy protocol of a COVID-19 'Drive Through' clinic
- PAT024 - Examining changes in healthcare utilisation as a result of the COVID-19 pandemic (Centre for Digital Transformation of Health)
- PAT027 - Analysing disparities in survival outcomes and health care resource utilisation in colorectal cancer
- PAT028 - Evaluation of automated deidentification of general practice free text health records
- PAT029 - Chlamydia study in Victoria, Australia; comparing testing, diagnosis, treatment and re-testing rate in urban and regional area of general practice in Victoria
- PAT030 - Analysis of factors associated with outcomes and survivorship of cancer across the continuum of health care using linked primary care hospital, clinical registry and population registry data
- PAT031 - Delays in access to treatment and patterns in primary care presentations and hospital visits for patients with bone and soft tissue sarcomas
- PAT032 - Evaluating a safety and efficacy protocol of a COVID-19 respiratory clinic
- PAT033 - The use of Electronic Health Record Monitoring for the Pharmacovigilance of Medicinal Cannabis
- PAT037 - Future Health Today: A pragmatic 12-month cluster randomised controlled trial of quality improvement activities in general practice compared to active control
- PAT037 FHT invitation to participate flyer for practices (PDF) - PAT043 - Primary healthcare during the Covid-19 pandemic: describing transition to telehealth and primary care response in eight countries (Note, data are not shared between countries. Researchers in each of 8 countries are analysing their own primary care dataset. Aggregated results will be brought together in the final paper)
- PAT044 - Management of Chlamydia Cases in Australia (MoCCA) - pilot
- PAT046 - Optimising Diagnosis and Management of Hearing Loss by General Practitioners – the HEarIng loss Data Infrastructure (HEIDI) Study
- PAT051 – Future Health Today
- PAT052 - Activating pharmacists to reduce medication related problems: The ACTMed stepped wedge randomised controlled trial
- PAT053 - GooD4Mum: Creating GRHANITE® linkage with the National Gestational Diabetes Register and identifying women with gestational diabetes in general practice
- PAT054 - A validation study of a diagnostic algorithm to identify patients with colorectal cancer (CRC) using primary care pathology data
- PAT055 - Near real-time automated vaccine safety signal detection using routinely collected healthcare data
- PAT058 - Evaluation of natural language processing of general practice free text health records
- PAT060 - EASI-C: Expanding Access to Self-collection to Increase Cervical Screening Participation through implementation support and evaluation
- PAT061 - The National Antimicrobial Prescribing Survey: Establishing the research data infrastructure to support automated surveillance and reporting across One Health
- PAT062 - Exploring the impact of COVID-19 on general practice consultations
- PAT063 - Building and evaluating interpretable machine learning models to classify appropriateness of antimicrobial prescriptions in Australian general practice
- PAT064 - Exploring pathology investigations for suspected diabetes in children attending general practice
- PAT073 - Cancer Health Services Utilisation Across the Continuum of Care
- PAT077 - Syphilis testing by serology and TP PCR in Victorian general practice - Novel strategies for improving syphilis testing and control
- PAT081 - Diagnostic Pathways in Pancreatic Cancer
- PAT083 - PELICAN: Primary care and gEnomic data LInkage for CANcer research
- PAT084 – Torch Recruit testing and feasibility analyses
- PAT086 – The Simply B Study
- PAT088 – Improving kidney disease management in primary care through clinical decision support
- PAT089 - A descriptive study of the primary care screening patterns with people living with a diagnosis of severe mental ill-health (also termed ‘severe mental illness’): A focus on cardiovascular and cardiometabolic health and risk factor screening
- PAT090 - Understanding General Practice perspectives and data repositories to prevent type 2 diabetes after gestational diabetes
- PAT091 - Quality indicators for the detection and management of chronic kidney disease in primary care: An exploratory study using electronic medical record data in Australia.
- PAT093 – The effect of the herpes zoster vaccine on vascular inflammation-related health outcomes
Over 120 general practices partner with Data for Decisions. We thank each and every one. Some practices wish to remain anonymous and some wish to be named.*
Victoria
- Aim Health Medical Centre, Level 1, 253 Lonsdale St, Melbourne, Vic 3000, Phone: 03 9005 2118
- Anglesea Medical, 3 McMillan Street, Anglesea 3230, Phone: 03 9215 6700
- Bell Post Medical Clinic, 290-306 Anakie Road, Norlane 3214
- Bendigo Primary Care Centre, 123 Arnold Street, Bendigo, VIC 3550, Phone: 03 5441 8622
- Campaspe Family Practice, 2-25 Caroline Chisholm Drive, Kyneton 3444 www.campaspefp.com.au
- Charlton Medical, 2 Learmonth Street, Charlton, Vic 3525, Phone: 03 5477 6888
- Churinga Medical Centre, 465 Mt Dandenong Road, Kilsyth, Vic 3137, Phone: 03 9722 9888
- Coolaroo Clinic, 512 Barry Road, Broadmeadows Vic 3048, Phone: 03 9309 7011
- Corio Medical Clinic, 1 Bacchus Marsh Road, Corio Vic 3214, Phone: 03 5274 9499
- Croydon Medical Centre, 88-90 Main Street, Croydon Vic 3136, Phone: 03 9723 4195
- Deepdene Surgery, 71 Whitehorse Road, Balwyn, Vic 3103, Phone: 03 9817 4233
- Donald Family Clinic, 7 McCracken Avenue, Donald, Vic 3480, Phone: 03 5497 1100
- Eastbrooke Family Clinic Lincolnville, 493-495 Keilor Road, Niddrie Vic 3042, Phone: 03 9289 3333
- Forsyth Park Medical Centre, 200 Forsyth Road, Truganina Vic 3029, Phone: 03 8360 5359
- Friendly Medical, 83 Watton Street, Werribee, 3030
- Gladstone Park Medical Clinic, 323 Mickleham Road, Tullamarine Vic 3043 Phone: 03 9330 2533
- Guardian Medical Highpoint, 200 Rosamond Road, Maribyrnong 3032 Phone: 03 9318 4000
- Guardian Medical Showgrounds Village, Shop 1, Showgrounds Village Shopping Centre, 320 Epsom Road, Flemington, 3031 Phone: 03 9372 3600
- HealthWest Medical and Specialist Centre, 549 Morris Road, Truganina, 3029 Phone: 03 8360 3877
- Hoppers Lane General Practice, 242 Hoppers Lane, Werribee 3030, Phone: 03 8731 6500
- Lincolnville Medical Centre, 25 McFarlane Street, Keilor East Vic 3033, Phone: 03 9337 2200
- Maidstone Family Clinic, 191 Ballarat Road, Maidstone Vic 3012, Phone: 03 9318 1881
- Mediscreen Clinic, 799 Toorak Road, East Hawthorn, Phone: 03 8922 3105
- Modern Medical Balwyn, 1/349-381 Whitehorse Road, Balwyn 3103, Phone: 03 9813 7600
- Modern Medical Caroline Springs, Suite 3A 1042 Western Hwy, Caroline Springs 3023, Phone: 03 8358 0100
- Modern Medical Craigieburn, 6/1-9 Mareeba Way, Craigieburn 3064, Phone 03 8339 7450
- Modern Medical Glenroy, Level 1, 3/789 Pascoe Vale Road, Glenroy 3046, Phone 03 8311 4204
- Modern Medical Dandenong, 176 Londsale Street, Dandenong 3175, Phone: 03 8763 8900
- Modern Medical St Kilda Road, Level 1, 391 St Kilda Rd, Melbourne 3004, Phone: 03 9869 2000
- Moreland General Practice, 80 Moreland Road, Brunswick Vic 3056, Phone: 03 9385 1250
- Murchison Medical Clinic, 21 Impey Street, Murchison 3610, Phone: 03 5826 2575
- MyClinic Bacchus Marsh, 12 Gell Street, Bacchus Marsh Vic 3340, Phone: 03 5367 8000
- MyClinic Balaclava, 161-163 Carlisle Street, Balaclava Vic 3183, Phone: 03 9531 8383
- MyClinic Bourke Street Mall, 108, 283-297 Bourke Street, Melbourne Vic 3000, Phone: 03 9650 5630
- MyClinic Hoppers Crossing, 10, 150 Hogans Road, Hoppers Crossing Vic 3029, Phone: 03 9974 3255
- MyClinic Melbourne, 91 William Street, Melbourne Vic 3000, Phone: 03 9620 5299
- MyClinic Southbank, 63 Power Street, Southbank Vic 3006, Phone: 03 9131 4210
- MyClinic Tarneit, 412 Derrimut Road, Tarneit 3029, Phone: 03 8742 2088
- MyClinic Werribee, 156, 167-179 Shaws Road, Werribee Vic 3030, Phone: 03 9290 9898
- MyClinic Werribee Village, 10, 167-179 Shaws Road, Werribee Vic 3030, Phone: 03 8742 3002
- O'Herns Road Medical Clinic, 62A Manor House, Epping, Vic 3076, Phone: 03 9408 6333
- Parkwood Green Medical Centre, Suite 4, 1-5 Kate Way, Hillside 3037, Phone: 03 9449 4100
- Peak Medical gpc, Hoppers Crossing Shopping Centre, 50 Old Geelong Rd, Hopper Crossing, Vic 3029, Phone: 03 9020 2600
- Plantation Medical Clinic, 14 Plantation Road, Corio, Vic 3214, Phone: 03 9020 2600
- Polaris Medical Centre, 32 Copernicus Crescent, Bundoora, Vic 3083, Phone: 03 9227 3300
- Portland Family Clinic, 156 Percy Street, Portland, Vic 3305, Phone: 03 5523 7144
- Robinson Street Medical Centre, 7 Robinson Street, Camperdown, Vic 3260, Phone: 03 5593 7070
- Rochdale Medical Centre, 1A Rochdale Square, Lalor, Vic 3075, Phone: 03 9706 5168
- Ross Court Medical Complex, 35 Ross Street, Niddrie, Vic 3042, Phone: 03 9379 8610
- St Mina Medical T/A Family Care Medical Centre, 404-406 Huntingdale Road, Mount Waverley Vic 3149, Phone: 03 9807 0022
- Sun Crescent Medical Clinic, 29 Sun Crescent, Sunshine, Vic 3020, Phone: 03 9312 6050
- Tatura Medical Centre, 4 Thomson Street, Tatura Vic 3616, Phone: 03 5824 1244
- The Clinic Sunshine, 53 Devonshire Road, Sunshine 3020, Phone: 03 9311 0691
- The University of Melbourne Shepparton Medical Centre, https://shepmed.unimelb.edu.au/home
- Toorak Medical Centre, 89-100 Mathoura Road, Toorak 3142 www.toorakmedicalcentre.com.au
- Utopia Refugee and Asylum Seeker Health, 5 Alexandra Avenue, Hoppers Crossing, Vic 3029, https://www.utopiarefugeehealth.com/
- Victoria Harbour Medical Centre, 850 Collins Street, Docklands Vic 3008, Phone: 03 9629 1414
- Women's Health Hub, 236 Hoppers Lane, Werribee Vic 3030, Phone: 03 8352 5441
- Wynhamvale Health Care, 127 Ballan Road, Wyndham Vale, Vic 3024, Phone: 03 9742 5148
- Yarra Medical - Richmond, 486 Victoria Street, Richmond, Vic 3121, Phone: 03 9428 6200
- Yarra Medical - The Hive, Shop 25 3/3 Victoria Street, Abbotsford, Vic 3067, Phone: 03 9027 6262
Queensland
- Goomeri Family Medical Practice, 10 Moore Street, Goomeri 4601, Phone: (07) 4168 4244
- Murgon Family Practice, 43A Stephen Street West, Murgon 4605, Phone: (07) 4168 2722
- Wondai Family Medical Centre, 18 MacKenzie Street, Wondai 4606, Phone: (07) 4168 5050
If you are part of a general practice interested in becoming a Data for Decisions partner, please contact us.
* Since 2019 our participation consent form lets practices choose to be acknowledged here. If you are a practice that partnered in 2018 and you would like to be acknowledged here, please contact us.
Patron Administrator
Department of General Practice and Primary Care
780 Elizabeth Street, The University of Melbourne VIC 3010, Australia
Email: patron-support@unimelb.edu.au
Or follow the link to complete the enquiry form
Project resources
Forms and Documents
- Introductory Q&A flyer about Data for Decisions and the Patron program of research
- Compliance Checklist - Fast Tracked Data Access Form
For general practices
- General Practice waiting room poster
- Patient Information Statement PDF, 139.06 KB
- GP Information Statement PDF, 128.5 KB
- General Practice Consent form PDF, 861.94 KB
- Consent for Practices to be acknowledged on this website (NEW)
- General Practice Data Sharing Agreement - Summary
- Introduction to GRHANITE software
- Data Privacy and Security
- Instructions to withdraw patients from contributing data
- VicREN Membership form (membership is free)
For researchers
- Contact us for a template Data Risk Management Plan
- Patron Summary for Ethics Applications
- Research Data Access Flowchart
- Patron Databook for researchers
- Data Access Agreement - Summary and researcher checklist
- Data security for data applicants
- Introductory presentation about working with Patron data