ICHOM Set of Patient-Centered Outcome Measures for Neurodevelopmental Disorders
The project, funded by the NHS England, brought together a global team of clinical experts, researchers, and patient advocates in a collaborative project with the International Consortium for the Harmonisation of Outcome Measures (ICHOM) to develop a Standard Set of outcome measures for neurodevelopmental disorders. Prof Coghill was the working group Chair and A/Prof Mulraney the lead research fellow on the project which was completed in 2024.
The ICHOM Standard Set includes standardised outcomes, measurement tools and time points and risk adjustment factors for neurodevelopmental disorders. Implementation of the Standard Sets is available for use internationally with a particular focus in increasing accessibility for governments, healthcare services, and clinicians in low- and middle-income countries.
Status: Completed
Project Team
Publications
Mulraney, M., de Silva, U., Joseph, A., da Luz Sousa Fialho, M., Dutia, I., Munro, N., Payne, J. M., Banaschewski, T., de Lima, C. B., Bellgrove, M. A., Chamberlain, S. R., Chan, P., Chong, I., Clink, A., Cortese, S., Daly, E., Faraone, S. V., Gladstone, M., Guastella, A. J., Järvdike, J., Kaleem, S., Lovell, M. G., Meller, T., Nagy, P., Newcorn, J. H., Polanczyk, G. V., Simonoff, E., Szatmari, P., Tehan, C., Walsh, K., Wamithi, S., & Coghill, D. (2024). International consensus on standard outcome measures for neurodevelopmental disorders. JAMA Network Open, 6(7). https://doi.org/10.1001/jamanetworkopen.2024.16760.