A program of research into dyskinesia in children with cerberal palsy
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Project Leader
Dr Adrienne Harvey
Project Details
This program of research aims to improve care for children with dyskinetic cerebral palsy (CP). Dyskinesia is not always accurately recognised in children with CP and there is no consensus among clinicians and researchers regarding tools to identify and measure the degree of dyskinesia. Management of this condition also varies widely. Medications are frequently used, but little evidence is available as to which are the most effective and side effects are common with many of them. The research involves implementing evidence-based identification, assessment and pharmacological management of children with dyskinetic CP and embedding this into clinical care.
Researchers
- Dr Kylie Crompton
- Ms Tessa Devries
- Ms Angela Guzys
- Dr Adrienne Harvey
- Ms Alex Holland
- Ms Elaine Meehan
- Ms Clare McKinnon
- Ms Linda McNamara
- Dr Carmen Pace
- Dr Sue Reid
- Dr Kirsty Stewart
- Ms Rachel Toovey
- Dr Kate Willoughby
- A/Professor Adam Scheinberg
- Ms Christine Westbury
Collaborators
- Australian Catholic University
- CanChild Centre for Childhood Disability Research
- Cerebral Palsy Alliance
- Deakin University
- La Trobe University
- Monash Health
- University of Sydney
- University of Western Australia
- Yooralla
Funding
- Cerebral Palsy Alliance
- Ian Potter Foundation
- Murdoch Children's Research Institute
- National Health and Medical Research Council
- The Lorenzo and Pamela Galli Charitable Trust
- The Royal Children's Hospital Foundation
- Victorian Medical Insurance Agency
Research Outcomes
- Stewart K, Harvey A and Johnston L. (2016). A systematic review of dyskinesia scales for children with cerebral palsy. Developmental Medicine and Child Neurology (under review)
- Baker LB, Harvey AR, Egberts KJ, Reddihough DS, Scheinberg A, Williams K. (2016). Trihexyphenidyl for dystonia in cerebral palsy (Protocol). Cochrane Database of Systematic Reviews 2016, Issue 11. Art. No.: CD012430.