Focus groups seek geneticists and genetic counsellors for EYE‑GEN research

Researchers behind the Enhancing Access for Youth with Eye Disease to GENomic Services (EYE‑GEN) project are recruiting geneticists and genetic counsellors to take part in focus groups, with the option of one‑on‑one interviews.

The study aims to gather insights into the barriers clinicians see and face when working with families affected by childhood eye disease, specifically childhood glaucoma, congenital cataracts and retinoblastoma. Contributions from participating clinicians will inform a series of workshops designed to create tailored supports for families and for healthcare professionals who care for children with these conditions.

Key details

• Who is sought: geneticists and genetic counsellors.
• Format: focus groups, with an option for individual interviews.
• Purpose: identify barriers to care and inform workshop development to support families and clinicians.
• Ethics approval: Flinders University Human Research Ethics Committee (ID8843).

Interested clinicians are invited to read the participant information sheet and register here: https://qualtrics.flinders.edu.au/jfe/form/SV_5p42WPiApy4udkG

For further enquiries, contact Giorgina Maxwell (Genetic Counsellor / PhD candidate) on (08) 8432 4265 or email giorgina.maxwell@flinders.edu.au.

The EYE‑GEN project positions clinician experience at the centre of developing practical, targeted resources to improve genomic service access for young people with serious eye conditions.