Are you a data superhero?
Heart failure, paediatric diabetes, chronic kidney disease… these are just some of the research projects that have used your de-identified data to improve patient outcomes and quality of life.
It is easy to underestimate the importance of sharing health data for research because it is so easy. Once you are a part of the Data for Decisions program, it all happens in the background. When you are involved in an in-person clinical trial, its easy to feel engaged and involved because it is all around you. But with data sharing, you are actually involved every day.
You are contributing to research right now!
You’ve helped create a proactive digital health intervention that can automate the detection of chronic disease! You’ve also helped to implement and evaluate strategies for strengthening the management of chlamydia infections in general practice.
The Data for Decisions website now has information on all the projects that have access to data in the Patron data repository. You can find projects that have already been completed as well as those that are currently underway. Research is listed by theme and there are over 45 projects to explore.
You can also find a list of Publications related to Patron projects if you are wanting to delve a bit deeper into the research and the outcomes. These are also listed by theme with over 15 papers to choose from and the number steadily growing.
One of the most recent publications from the Health and Biomedical Research Information Technology Unit looks at the conversion of data into format that can be easily shared and analysed across international databases. This is important for activities such as the active surveillance of drug safety across the USA, Australia, Europe and the Asia Pacific.
Ward, R., Christine Mary Hallinan, Ormiston-Smith, D., Chidgey, C. and Boyle, D. (2024). The OMOP common data model in Australian primary care data: Building a quality research ready harmonised dataset. PloS one, 19(4), pp.e0301557–e0301557. doi:https://doi.org/10.1371/journal.pone.0301557.
Another recent publication on the prescription of antibiotics for sore throats from 2013-2017 shows how outcomes from this data can feed into health policy.
Carville, K.S., Meagher, N., Abo, Y.-N., Jo-Anne Manski-Nankervis, Fielding, J., Steer, A., McVernon, J. and Price, D.J. (2024). Burden of antimicrobial prescribing in primary care attributable to sore throat: a retrospective cohort study of patient record data. BMC primary care, 25(1). doi:https://doi.org/10.1186/s12875-024-02371-y.
Reminder to those interested in accessing Patron data – 2024 applications must be received by:
- Friday 25 October 2024 for review by the independent Data Governance Committee in November 2024
If you have any questions or comments relating to Patron, you can contact Patron Administration patron-support@unimelb.edu.au