PATRON
The Patron program utilises GRHANITE™ software to collect and de-identify information from patient records in consenting general practice settings. Patients have the option to withdraw their data, and participating practices.
PATRON'S AIMS
To make better use of existing primary care data, to improve knowledge, medical education, health care policy and the way medical care is delivered, and so ultimately improve the health of Australians.
The PATRON program utilises GRHANITE™ software to collect and de-identify information from patient records in consenting general practice settings.
Patients have the option to withdraw their data, and participating practices ensure staff agreement for data collection.
Both patient and practitioner data undergo de-identification and are stored in the Patron primary care data repository.
An independent Data Governance Committee oversees data storage and usage, reviewing all applications for data access.
Researchers must adhere to strict legal and ethical standards and commit to providing plain language summaries of their research findings.
Data providers have the choice to participate in additional research or clinical trials related to Data for Decisions and the Patron program.
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