Paediatric Fertility Decision Aid Study

Project Details

Fertility loss is one of the side effects of cancer treatment. Advances in reproductive technologies may one day offer children and adolescents with cancer, the possibility of future fertility through ovarian or oocyte tissue retrieval and storage prior to commencement of cancer therapy. However such treatments are regarded as investigational in children due to immaturity of gonadal tissue, and also pose unique clinical and ethical dilemmas with respect to informed consent and beneficience for the young person. It is now recommended that where cancer treatment poses a fertility risk, fertility preservation should be discussed with

all patients, and with parents or guardians. Long-term survivors report dissatisfaction with the quality of such discussions, or have no memory of them. Over 95% of paediatric oncologists surveyed in Australia and New Zealand believe that centre-specific clinical protocols are necessary to establish standards of care. However such guidelines rarely exist. Furthermore there is little information on recovery of gonadal function post chemotherapy in children and adolescents, to further guide discussions regarding fertility options after chemotherapy. Several sub-studies are available which may assist with the development of Fertility Preservation guidelines and improve patient outcomes at the Royal Children’s Hospital Melbourne, which include the evaluation of a fertility preservation decision aid for parents.

This project is being done in collaboration with the Paediatric and Adolescent Fertility Preservation Taskforce. Research Group Leader : Dr Yasmin Jayasinghe. Please contact Dr Jayasinghe with any questions or queries.

Researchers

Collaborators

  • This project is being done in collaboration with the Paediatric and Adolescent Fertility Preservation Taskforce. Research Group Leader : Dr Yasmin Jayasinghe. Please contact Dr Jayasinghe with any questions or queries.

Research Group

The Psychosocial Health and Wellbeing Research (emPoWeR) Unit



Faculty Research Themes

Cancer, Child Health

School Research Themes

Cancer in Medicine, Child Health in Medicine



Key Contact

For further information about this research, please contact the research group leader.

Department / Centre

Obstetrics and Gynaecology

Unit / Centre

The Psychosocial Health and Wellbeing Research (emPoWeR) Unit